Trusting your instinct

Joey, centre, with his girlfriend Tasha and good friend Harry Howells.

I’ve had some super feedback from readers following my column about the sepsis that affected my son Joey when he was a toddler. The memories of that traumatic event were sparked by a humorous line he had written to me in a birthday card: “From the bottom of my heart, thank you for giving me toilet paper when I come over.”

The sepsis was triggered by Meckel’s diverticulum, a pocket of excess tissue that in rare cases can become entangled with the bowel, cutting it off. This led to an infection which in turn led to Joey’s sepsis. Sepsis can turn fatal within hours, so we were extremely lucky to catch it in time, despite the doctors missing it initially. He was rushed to Leeds General Infirmary for emergency surgery which saved his life. Today Joey lives with an upset stomach every day, and hence the witty line he wrote in his card. Despite awareness campaigns, sepsis is still the UK’s second biggest killer disease and is still being missed by both medical professionals and the general public.

Retired nurse Janet Pearce said: “A parent instinctively knows when something is wrong…Even as a nurse I was in situations where I knew something was wrong, but not what, told the doctor and persisted, to find I was right. Nurses call it our sixth sense. More than one contact with services should be a red flag…. NICE (National Institute for Health and Care Excellence) have guidelines for assessing children, but…there are no substitutes for parental and professional gut instincts and high standards of diagnostic ability…. At the heart of all medical situations is communication. That is the most important skill of all. I am so glad your lovely boy made it!”

We saw doctors twice before Joey was admitted, as well as calling the out of hours phone service. And Janet is right about parental instinct. Joey was my youngest of three and I hardly ever called the doctor but those I spoke to ignored my experienced maternal voice. I am now far more assertive where health is concerned. I’d rather harass a doctor and be proved wrong than stay at home and be proved right!

Janet adds: “You are absolutely correct about being proved wrong. Better to be safe than sorry. I used to send patients to A&E and tell them if the doctor had a go at them to get them to ring me…It really should not be a battle, but sadly it often is.”

It sounds like any patient would be very lucky having Janet fighting their corner! Liz Davidson, who has two boys herself, puts it rather well when she says: “What would sons do without Mam?”

Her sentiments are echoed by Neil McBride: “Proof that a mother’s instinct is not to be ignored.” And Joe Micheli adds: “Great story Sarah. You never stop being a parent.”

Jane Reed-Thomas is right too when she says: “What a story Sarah. Glad you trust your instincts now!”

Lynn Catena, who lives in Canada but is originally from Yorkshire, says: “So glad they finally recognised he needed help. I have nothing but praise for the NHS after my 2019 visit to the UK turned into a stay in intensive care (3 days), then a week of observation. I credit my sister (who passed away in February this year) with her determination at her doctor’s office to get me looked after. I am happy I always travel with medical insurance because you never know what can happen.”

I’m extremely glad Lynn got the service she needed, and in lots of instances the NHS works brilliantly and the staff are excellent. I simply want to highlight the lack of awareness about sepsis and its symptoms, despite it being such a huge killer in the UK.

One of Joey’s close friends Harry Howells saw my column online and got in touch to say: “This is a beautiful article, Sarah. And I’m sure I’m speaking on all of his friends’ behalf when I say we’re so happy he’s with us and healthy!”

Yes, Harry, it makes me very happy too!

Do you have opinions, memories or ideas to share with me? Get in touch with me using the ‘Contact’ button on the top right.

This column appeared in the Darlington & Stockton Times on Friday 25th and the Ryedale Gazette and Herald on Wednesday 23rd July  2025

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