Mutual response to TB epidemic

The 1910 postcard sent to his wife Lolly from Benenden Sanatorium patient Gilbert showing snow on the floor and on his bed thanks to the windows in his room being left wide open, no matter what the weather. It was the prescribed treatment for TB in the days before antibiotics became widely available. Picture from the Benenden Health archives.


I was at home chatting to my mum recently, and she was reminiscing about days gone by.

One story she mentioned was very sad indeed. A local family’s 10-year-old son had fallen over while playing and he suffered a nasty graze due to the rough road surface. He developed an infection and died. Mum is not sure exactly when it was, but thinks sometime in the 1930s when antibiotics were not readily available.

It’s startling to think that something as everyday as a child falling over could lead to a family losing their child. Now, if a wound becomes infected, your doctor will prescribe you antibiotics which should quickly clear it up. Today’s parents rarely need to worry if their child has a minor mishap in the playground.

Although some forms of antibiotic were discovered earlier, it was Alexander Fleming’s discovery of penicillin in 1928 that led to a revolution in healthcare. Antibiotic use really took off in the 1940s after chemists Ernst Chain and Howard Florey developed a way to purify penicillin enabling it to be mass produced.

Initially it was strictly rationed and during World War II was restricted to the military, but once the war was over, it became available to the general public via their local doctors. However, it would still have only been available to those who could afford to buy it. Not until the introduction of the National Health Service in 1948 was the whole population able to benefit.

In the early 2000s, I was commissioned to write the history of the Benenden Healthcare Society, a mutual health organisation originally established to combat high rates of deaths from Pulmonary Tuberculosis among postal workers. My research on that book taught me the devastating consequences TB had on the service and its employees.

In the late 1800s, Post Office clerk Charles Garland was appalled at the plight of his many colleagues who were contracting and dying from tuberculosis. In 1900, about 300,000 people nationally were suffering, but only 22,000 a year could be treated. The dusty, cramped offices in which sorting clerks and telegraphists worked were ideal conditions for the airborne disease to flourish. These employees earned just a few pounds a week and could not afford to pay for healthcare. Even if a worker did take time off for treatment, it meant no income for their family, so there was enormous pressure for them to return to their jobs, which they often did before they were fully cured. This meant they would continue to infect co-workers, and would likely die from the disease anyway.

Garland suggested a ‘mutual’ way of helping his colleagues. If he and the thousands of his fellow Post Office employees each contributed a small amount of their wages into a fund, they could raise enough money to help those who contracted TB.

His idea took off, and his new society was able to fund the building of a sanatorium near the village of Benenden in Kent which welcomed its first Post Office patients in March 1907. It was long before an effective cure for TB was found, so the main treatment was rest, fresh air and hope. Patients would be wheeled outside in their beds every morning, no matter how cold it was, and doors and windows remained open day and night. In 1910, one long suffering patient wrote a postcard to his wife: ‘Dear Lolly. This picture shows the result of the snow storm I told you about some time back. I did not sleep so cold as you might think it was, colder last night than I have ever known it to be here. With fondest love from Gilbert.’

Receiving treatment at the sanatorium meant employees did not return to work until they were fully cured, and thus infection rates reduced. However it was not until the early 1950s that fewer patients meant empty beds and the effectiveness of antibiotics on TB were finally being felt. The Society refocussed its core services away from TB and towards things like cancer and diagnostic consultations.

TB is still around today, although much less prevalent in the UK. It used to be known as the ‘artists’ disease’ thanks to fact that several writers, painters and composers succumbed to it, most notably Emily and Anne Bronte, Franz Kafka, Chopin, Modigliani and George Orwell.

Do you have opinions, memories or ideas to share with me? Get in touch with me using the ‘Contact’ button on the top right.

This column appeared in the Darlington & Stockton Times on Friday 19th and the Ryedale Gazette and Herald on Wednesday 17th June 2026

Trusting your instinct

Joey, centre, with his girlfriend Tasha and good friend Harry Howells.

I’ve had some super feedback from readers following my column about the sepsis that affected my son Joey when he was a toddler. The memories of that traumatic event were sparked by a humorous line he had written to me in a birthday card: “From the bottom of my heart, thank you for giving me toilet paper when I come over.”

The sepsis was triggered by Meckel’s diverticulum, a pocket of excess tissue that in rare cases can become entangled with the bowel, cutting it off. This led to an infection which in turn led to Joey’s sepsis. Sepsis can turn fatal within hours, so we were extremely lucky to catch it in time, despite the doctors missing it initially. He was rushed to Leeds General Infirmary for emergency surgery which saved his life. Today Joey lives with an upset stomach every day, and hence the witty line he wrote in his card. Despite awareness campaigns, sepsis is still the UK’s second biggest killer disease and is still being missed by both medical professionals and the general public.

Retired nurse Janet Pearce said: “A parent instinctively knows when something is wrong…Even as a nurse I was in situations where I knew something was wrong, but not what, told the doctor and persisted, to find I was right. Nurses call it our sixth sense. More than one contact with services should be a red flag…. NICE (National Institute for Health and Care Excellence) have guidelines for assessing children, but…there are no substitutes for parental and professional gut instincts and high standards of diagnostic ability…. At the heart of all medical situations is communication. That is the most important skill of all. I am so glad your lovely boy made it!”

We saw doctors twice before Joey was admitted, as well as calling the out of hours phone service. And Janet is right about parental instinct. Joey was my youngest of three and I hardly ever called the doctor but those I spoke to ignored my experienced maternal voice. I am now far more assertive where health is concerned. I’d rather harass a doctor and be proved wrong than stay at home and be proved right!

Janet adds: “You are absolutely correct about being proved wrong. Better to be safe than sorry. I used to send patients to A&E and tell them if the doctor had a go at them to get them to ring me…It really should not be a battle, but sadly it often is.”

It sounds like any patient would be very lucky having Janet fighting their corner! Liz Davidson, who has two boys herself, puts it rather well when she says: “What would sons do without Mam?”

Her sentiments are echoed by Neil McBride: “Proof that a mother’s instinct is not to be ignored.” And Joe Micheli adds: “Great story Sarah. You never stop being a parent.”

Jane Reed-Thomas is right too when she says: “What a story Sarah. Glad you trust your instincts now!”

Lynn Catena, who lives in Canada but is originally from Yorkshire, says: “So glad they finally recognised he needed help. I have nothing but praise for the NHS after my 2019 visit to the UK turned into a stay in intensive care (3 days), then a week of observation. I credit my sister (who passed away in February this year) with her determination at her doctor’s office to get me looked after. I am happy I always travel with medical insurance because you never know what can happen.”

I’m extremely glad Lynn got the service she needed, and in lots of instances the NHS works brilliantly and the staff are excellent. I simply want to highlight the lack of awareness about sepsis and its symptoms, despite it being such a huge killer in the UK.

One of Joey’s close friends Harry Howells saw my column online and got in touch to say: “This is a beautiful article, Sarah. And I’m sure I’m speaking on all of his friends’ behalf when I say we’re so happy he’s with us and healthy!”

Yes, Harry, it makes me very happy too!

Do you have opinions, memories or ideas to share with me? Get in touch with me using the ‘Contact’ button on the top right.

This column appeared in the Darlington & Stockton Times on Friday 25th and the Ryedale Gazette and Herald on Wednesday 23rd July  2025