Tag: Sepsis

Trusting your instinct

Joey, centre, with his girlfriend Tasha and good friend Harry Howells.

I’ve had some super feedback from readers following my column about the sepsis that affected my son Joey when he was a toddler. The memories of that traumatic event were sparked by a humorous line he had written to me in a birthday card: “From the bottom of my heart, thank you for giving me toilet paper when I come over.”

The sepsis was triggered by Meckel’s diverticulum, a pocket of excess tissue that in rare cases can become entangled with the bowel, cutting it off. This led to an infection which in turn led to Joey’s sepsis. Sepsis can turn fatal within hours, so we were extremely lucky to catch it in time, despite the doctors missing it initially. He was rushed to Leeds General Infirmary for emergency surgery which saved his life. Today Joey lives with an upset stomach every day, and hence the witty line he wrote in his card. Despite awareness campaigns, sepsis is still the UK’s second biggest killer disease and is still being missed by both medical professionals and the general public.

Retired nurse Janet Pearce said: “A parent instinctively knows when something is wrong…Even as a nurse I was in situations where I knew something was wrong, but not what, told the doctor and persisted, to find I was right. Nurses call it our sixth sense. More than one contact with services should be a red flag…. NICE (National Institute for Health and Care Excellence) have guidelines for assessing children, but…there are no substitutes for parental and professional gut instincts and high standards of diagnostic ability…. At the heart of all medical situations is communication. That is the most important skill of all. I am so glad your lovely boy made it!”

We saw doctors twice before Joey was admitted, as well as calling the out of hours phone service. And Janet is right about parental instinct. Joey was my youngest of three and I hardly ever called the doctor but those I spoke to ignored my experienced maternal voice. I am now far more assertive where health is concerned. I’d rather harass a doctor and be proved wrong than stay at home and be proved right!

Janet adds: “You are absolutely correct about being proved wrong. Better to be safe than sorry. I used to send patients to A&E and tell them if the doctor had a go at them to get them to ring me…It really should not be a battle, but sadly it often is.”

It sounds like any patient would be very lucky having Janet fighting their corner! Liz Davidson, who has two boys herself, puts it rather well when she says: “What would sons do without Mam?”

Her sentiments are echoed by Neil McBride: “Proof that a mother’s instinct is not to be ignored.” And Joe Micheli adds: “Great story Sarah. You never stop being a parent.”

Jane Reed-Thomas is right too when she says: “What a story Sarah. Glad you trust your instincts now!”

Lynn Catena, who lives in Canada but is originally from Yorkshire, says: “So glad they finally recognised he needed help. I have nothing but praise for the NHS after my 2019 visit to the UK turned into a stay in intensive care (3 days), then a week of observation. I credit my sister (who passed away in February this year) with her determination at her doctor’s office to get me looked after. I am happy I always travel with medical insurance because you never know what can happen.”

I’m extremely glad Lynn got the service she needed, and in lots of instances the NHS works brilliantly and the staff are excellent. I simply want to highlight the lack of awareness about sepsis and its symptoms, despite it being such a huge killer in the UK.

One of Joey’s close friends Harry Howells saw my column online and got in touch to say: “This is a beautiful article, Sarah. And I’m sure I’m speaking on all of his friends’ behalf when I say we’re so happy he’s with us and healthy!”

Yes, Harry, it makes me very happy too!

Do you have opinions, memories or ideas to share with me? Get in touch with me using the ‘Contact’ button on the top right.

This column appeared in the Darlington & Stockton Times on Friday 25th and the Ryedale Gazette and Herald on Wednesday 23rd July  2025

A close call for my son

Joey on his third birthday, just three weeks before he fell ill

 

Joey in Leeds General Hospital after an operation that saved his life after he contracted sepsis

 

Joey and I on a recent walk around York City Walls 20 years after he contracted sepsis. He lives with the after effects every day, but it’s a small price to pay compared to the alternative.


As I write this, I am basking in the glow of lovely bank holiday upon which it also happened to be my birthday. My boys came over with their girlfriends and yet again I was blessed to receive cards from each of them with words inside that touched my heart.

 

My older two would be embarrassed if I publicised what they had written, but my youngest, Joey, has given me his blessing to share his message, which had me crying from both laughter and emotion.

 

He wrote: “From the bottom of my heart, thank you for giving me toilet paper when I come over.

 

“Thank you for all your sacrifices over the years to make sure we boys were happy and healthy. We don’t forget what you do for us (car insurance, my new bed, pancakes on Sunday, cooking, washing, cleaning, new toothbrush heads, lifts, supporting our choices, and an infinite amount more).”

 

These are simple things that his words demonstrate he doesn’t take for granted. I need to explain the first line though, and why that hilarious sentence stems from something far less amusing.

 

When Joey was a toddler, he became ill on a visit to my mum’s. He could not stop vomiting and I assumed it was a stomach bug. I was not too worried at first, but by the evening was getting concerned and took him to the out-of-hours doctor. He advised me that it was likely a bug and to come back if it didn’t clear up.

 

By the following day, things had not improved. Joey was gulping down beakers full of water, yet did not pass any urine all day. My unease was mounting, and by the evening, I was really worried. Joey would lie down on the sofa, then stand up and run to another seat, as if he could not get comfortable. I called the out-of-hours doctor, and she asked me some questions:

 

Did Joey have a temperature? I felt his forehead and it wasn’t hot. “No,” I replied.

 

Was he alert? Yes, he was running from pillar to post.

 

Was he drinking? “Yes, loads,” I replied, but informed her that his nappy had been dry all day.

 

She suggested to give it another night and call back if he hadn’t improved by morning.

 

It was the worst advice she could have given me. What I had unknowingly described were classic signs of septic shock, but she didn’t pick up on them. I spent a sleepless night with a child who would not settle, who was vomiting a dark brown substance (I now know were dried specks of blood called ‘coffee grounds’), and I STILL did not call an ambulance because I trusted the doctor’s advice. I ignored all my instincts screaming at me to get help (I have never done it since).

 

I took him back to the doctors first thing and we were very soon in an ambulance speeding on blue lights to Leeds General Infirmary for emergency surgery to save Joey’s life.

 

He made it through the operation in which a large portion of his dead small intestine had to be removed. He’d had a Meckel’s diverticulum, which is a pouch-shaped piece of excess tissue many people have from birth. In rare cases like Joey’s, it can become entangled with the bowel, cutting it off. This led to an infection which in turn led to the sepsis, the UK’s second biggest killer after cardiovascular disease. Many kinds of infection can lead to sepsis, so knowing the signs is extremely important. Despite awareness campaigns, it is still being missed, 20 years after it happened to Joey.

 

Had the doctor worded her questions differently, I believe she would have realised he was in an urgent situation. Joey had low body temperature, which we rarely look for. I now have a thermometer to take accurate readings rather than relying on my hand. Agitation and lack of urination are also signs of the body entering septic shock, the advanced, life-threatening stage of sepsis where the vital organs start to shut down.

 

The long-term effect is that he lives with the discomfort and inconvenience of an upset stomach every single day. Hence, Mum supplements his higher-than-average loo roll costs.

 

But that is a very small price to pay to still have my beautiful son in my life.


Do you have opinions, memories or ideas to share with me? Get in touch with me using the ‘Contact’ button on the top right.

This column appeared in the Darlington & Stockton Times on Friday 13th and the Ryedale Gazette and Herald on Wednesday 11th June 2025